November 20, 2025

Meet Janelle!

Meet Janelle or as her family calls her, Ellie! She has a rare genetic condition called leukodystrophy-Aicardi-Goutieres trex 1 syndrome. She is one and 400 in the world and roughly 1 and 6 in the state of Michigan. Her condition doesn’t stop her from doing the things loves.

She is the most loving and out going 9-year-old. She loves to be in a bowling alley and is part of a bowling club. Ellie also loves to spend time out side and going camping. She also loves to spend time with her companion dogs Odin and Theodore.

We can’t wait to take Janelle and her family to Disney World with the help of Jersey Mikes, Kroger, Planet Fitness, Masco, Kinetyc, Emagine Theatres, Canterbury Village, Village of Rochester, Glenlore Trails and our charitable partner Angels of Hope!

Each child that Jay’s Juniors has had the privilege to help has a unique and inspiring story. Listen to an exclusive audio clip from the Jay Towers in the Morning show, where Jay talks about the child’s story and the impact Jay’s Juniors has had on their life. We invite you to get to know these incredible kids and celebrate their strength and joy with us.

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Make a Dream Come True. Share Your Child’s Story

Do you know a family with a child facing serious health challenges who could benefit from a magical experience? Nominate them for Jay’s Juniors! Our program is dedicated to providing unforgettable moments and joyful experiences for children battling chronic and terminal illnesses. By nominating a deserving family, you can help us bring smiles, hope, and cherished memories to those who need it most.

Categories: 2025, KidsPublished On: November 20, 2025